Autism, Family, Uncategorized

The Show Must Go On

Raising an autistic child often feels like a battle you might never win. And I’ve found that the best way to survive is to break down the difficulties in to smaller chunks - divide and conquer, so to speak. The only trouble with it is that the battles come fast and frequently, leaving little time… Continue reading The Show Must Go On

Autism, Family, Tattle, Uncategorized

New Year’s Adaptation

Life is all about balance, I suppose. I try hard to ensure Sawyer has the same opportunities as other children (particularly his sister), but at what point do you accept that your child might just want to be left alone? That they're happier indoors? Lloyd and Piper went out tonight, to spend some time with… Continue reading New Year’s Adaptation

Autism, Family, Uncategorized

‘Twas the Night before Christmas

(the autism way) ‘Twas the night before Christmas, when all through the house Sawyer could hear everything – a clock ticking; a mouse The stockings weren’t hung by the chimney with care They were straightened obsessively, so almost thread-bare His sister was nestled all snug in her bed, While the world danced around in Sawyer’s head.… Continue reading ‘Twas the Night before Christmas

Autism, Family

Confessions

Sawyer is an incredibly endearing and often hilarious 7-year-old. He is kind, inquisitive, outgoing and incredibly handsome.  He faces the challenges autism throws at him with admirable determination. The meltdowns, the sensory overload that fills his days, and his lack of special awareness are an example of the threads that tie Sawyer and autism together.… Continue reading Confessions

Autism, Family, Uncategorized

Happy Meal

After school one day, I drove my children to our local Macdonald’s as a special treat. There was a time not long ago when I didn’t think Sawyer would ever feel the childhood elation of a random trip for fast food, and so each burger they consumed was as much a delight for me as… Continue reading Happy Meal

Autism, Family, Uncategorized

Floodgates

By the time Sawyer started school, most of my anxieties were fuelled by a fear that he would be misunderstood. He had not long since turned 4 years old when he went in to reception class, and had been verbal for only a few short weeks. Sawyer’s inability to keep still remained his overarching characteristic,… Continue reading Floodgates

Autism, Family

Childhood Sweethearts

Before we received Sawyer’s diagnosis of autism, I struggled to explain his unusual behaviours to other parents. I desperately wanted them to see how sweet and loving he was, but often those traits were masked by his inability to keep still, his fondness for running headlong in to walls, and his exceptional talent for breaking… Continue reading Childhood Sweethearts

Autism, Family

School Disco

Just before the end of half term, Sawyer announced that he wanted to go to his Halloween-themed school disco. His Dad and I looked up at each other in disbelief, shock, and a little bit of fear. Sawyer has never been able to cope with the sensory overload of a disco. Between the flashing lights, loud… Continue reading School Disco

Autism, Family

Deadline

The final deadline for Sawyer's EHCP funding was on Tuesday and I had already been told that it was unlikely to go to panel until the day before. Nevertheless, I checked the post with angst each day for a week leading up the deadline, cursing every day it wasn't there. By the time Tuesday finally crept… Continue reading Deadline

Autism, Family, Uncategorized

Planning to Fail

Sawyer’s planning meeting took place just days before school reopened after the long summer break. These meetings take place after all professional reports are gathered, and mark the end of EHCP application, determining what should be written in to the final plan. All the guidance documentation suggests that the child in question should be allowed… Continue reading Planning to Fail